Share Your Story

Our Stories Fuel Our Mission: Together, We Step Forward to Cure TSC®

Every participant in the Step Forward to Cure TSC® walk has a unique story—one that reflects the challenges, triumphs, and hopes tied to their journey with tuberous sclerosis complex (TSC). While no two experiences are the same, the TSC community shares common threads: overcoming adversity, finding joy, navigating uncertainty, and leaning on the compassionate support of those who understand. On event day, we unite as individuals living with TSC, caregivers, and loved ones to celebrate milestones, honor caregivers, and remember those we’ve lost.

This year, we are honored to showcase stories from our participants that inspire hope and strengthen our shared mission. Whether you’re a walker, team captain, sponsor, or supporter, your journey fuels essential programs, research, and a vision for a brighter future. Why do you walk? Why do you fundraise? How has TSC touched your life? Share your story to inspire others and help build a community determined to overcome TSC, one step at a time.

Participant Story Submission Form

We’d love to hear about your journey with the Step Forward to Cure TSC® walk! Your story can be about any walk you’ve participated in, whether it’s from this year or a previous event. Share your most memorable moments, the impact the walk has had on you, and how it has inspired or supported you in your TSC journey. There’s no wrong way to share—your experience matters, and we look forward to hearing how the walk has touched your life.

Share your story of hope
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Where do you live?

What's your connection to the person with TSC?
I am submitting my experience as:
We encourage you to share your most inspiring, funny, or heartfelt moments from a walk you attended. We’d love to hear about moments that stood out to you, whether it’s meeting someone new, achieving a fundraising goal, or a touching story from event day.
Share your motivation for walking, fundraising, or supporting the Step Forward to Cure TSC® event.
Describe how the event has influenced your connection to the TSC community, provided support, or inspired hope.
If you participated as part of a team or team captain, what was your team’s name?
Who made a lasting impact on your experience at the walk? Whether it was an individual, team, or volunteer, share the story of someone who inspired you, supported you, or made your day special. This could be a volunteer, fellow participant, team member, or anyone who helped make your journey memorable.
Maximum upload size: 52.43MB
Please upload photos in jpg or png format. Video clips should not exceed 2MB. Please try to include your child's last name as part of the file name (i.e., smith_photo_1.jpeg)
Disclaimer: We value every story submitted and while not all may be used, the TSC Alliance reserves the right to select which stories will be featured. Submitted stories may be edited for clarity, length, or fit within available space, and may be used across TSC Alliance publications (including digital and print) for the purpose of raising awareness.

By checking the box below and typing my name, I agree to the terms of use, which include granting the TSC Alliance permission to use my story and photo in their publications, website, and social media channels without notification or payment. I understand the terms and waive any rights to royalties or other compensation. I also acknowledge that once posted online, content can be downloaded by others and agree to indemnify and hold harmless the TSC Alliance from any claims. I have carefully read and fully understand the release and agree to its terms.